ryangrace11q

Just another WordPress.com site

End Of Year Review December 31, 2013

Filed under: Uncategorized — ryangrace11q @ 10:09 pm

I should totally be grading papers right now.  Instead, I’m sitting on the couch with my little Rooster trying to remember everything that I filed away in the back of my brain to blog about… but I’m pretty sure that file got shredded today when I was trying to organize our office.  Darn.

Some of you might be wondering about our decision on the immunology issue.  Basically, since there have been no major changes in Ryan’s health we haven’t done anything about it.  On November 25th Ryan got a cold.  I know this to be the exact date because I actually typed the word “boogers” on iCal so we could chart her progress.  Even though she had a boogie nose for at least 4 weeks (for real), there was no fever or cough.  I emailed the immunology doctor that spoke at the last 11q conference in San Diego and sent him all of Ryan’s results and he also said that the next step for her would be a trial run of IVIG if her health didn’t improve.  For us, a month-long cold without a fever is a huge improvement!

Here are some other random things:

Ryan saw the eye doctor last week and her eyes have worsened so we’ve been trying to keep her current glasses on her as much as possible and she’s getting a new pair with stronger lenses soon!

Although she’s still not walking independently, Ryan is using a posture walker (borrowed from Help Me Grow) and zooming all over the house!  A couple of weeks ago she just decided that she was going to become a pro at it (after weeks of just being able to go in a straight line – sometimes) and now she can turn corners, back up, and even run!  It’s so funny.  I really need to upgrade this blog so I can post video!

OLYMPUS DIGITAL CAMERA

She goes from carpet to wood with ease!

OLYMPUS DIGITAL CAMERA

Taking a break for Mickey!

OLYMPUS DIGITAL CAMERA

Just going to check out the tree! She’ll go from room to room without warning!

OLYMPUS DIGITAL CAMERA

On this day, after visiting the Xmas tree, she came out with a VERY fragile ornament on her walker! We still don’t know how!

Also, Ryan is communicating so much more with signs.  Sometimes she will string several together – “Eat. More. Please.”

OLYMPUS DIGITAL CAMERA

“eat”

OLYMPUS DIGITAL CAMERA

“more”

OLYMPUS DIGITAL CAMERA

“please”
Ryan modified this herself. She should be rubbing her chest but she rubs her own hand.

OLYMPUS DIGITAL CAMERA

“all done”

OLYMPUS DIGITAL CAMERA

“thank you”

OLYMPUS DIGITAL CAMERA

“oh no!”

OLYMPUS DIGITAL CAMERA

If we ask her if she’s being shy, she will put her head down on her shoulder.

OLYMPUS DIGITAL CAMERA

“so big!”

OLYMPUS DIGITAL CAMERA

Here she’s either doing “itsy, bitsy spider” or rolling it for pat-a-cake.

Our newly finished basement is finally coming together.  The girls (especially Charlie) have been helping me organize everything and assisting with crafts to decorate.  Although we still don’t have furniture for adults to sit on, the girls’ side looks amazing!

OLYMPUS DIGITAL CAMERA

the reading nook

OLYMPUS DIGITAL CAMERA

OLYMPUS DIGITAL CAMERA

OLYMPUS DIGITAL CAMERA

Making hand/foot prints for the walls.

OLYMPUS DIGITAL CAMERA

OLYMPUS DIGITAL CAMERA

OLYMPUS DIGITAL CAMERA

Finally, Christmas was awesome!  The girls were so excited about Santa coming and absolutely adorable on Christmas morning.  Ryan opened some presents on her own but still got lots of help from big sis!  They both got tons of nice things and are loving playing with their new toys.  Every year gets better and better!  I hope all of you had as nice of a Christmas with your loved ones as we did!

OLYMPUS DIGITAL CAMERA

Christmas morning #2!!!
(At grandma and grandpa’s house!)

OLYMPUS DIGITAL CAMERA

Playing in the ball pit.

OLYMPUS DIGITAL CAMERA

A water table!!!!

OLYMPUS DIGITAL CAMERA

Ryan LOVES her Mickey Mouse pillow pet!!!

 

3 Responses to “End Of Year Review”

  1. Joyce Carr Says:

    Liz, I remember when our little grandson signed — he made up several that were his very own, but we all understood. Brings back such sweet memories. Our kids had a video series, “Signing Time w/ Alex & Leah” (or something like that). Great resource for children who sign. Blessing to you and your family. /jc

  2. bobtheump Says:

    thank you so much for the update. Seeing pictures of Ryan in the reverse Walker reminds me off when Sarah used that same type walker. Learned alot about fixing drywall from that walker! Like Ryan she learned how to use it like a pro and then one day she just stopped using it and took off walking! Great victories are just around the corner!!!

  3. bobtheump Says:

    Thank you for the update. I love the pictures of Ryan in her reverse walker. It reminds me of Sarah when she used one. Like Ryan she learned to use it like a pro and then one day she decided she didn’t need it anymore and took off walking. (Ask her about using her walker in her Grandpa’s driveway.) There are great victories for you and your whole family just around the corner!!!


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s