I hope you all had a great Christmas and New Year! We sure did! We got to spend time with both of our families and saw lots of friends as well. The girls were so good this year and Santa knew just what they would love! Experiencing Christmas through your children is such a gift!
To start 2016, Ryan will be getting an MRI to check on her neck. I can’t believe it’s been over 3 months since her surgery. She is doing really well but she still bats at her neck on occasion and we wonder if she’s in pain or it just itches. Every once and a while she will cry for no reason (that is obvious to us) and that makes us a little nervous. But most times she’s on the move and getting herself into all kinds of trouble!
Ryan will also be starting a new kind of speech therapy called PROMPT which stands for Prompts for Restructuring Oral and Muscular Phonetic Targets. It is used to restructure the speech production capabilities of children with a variety of speech disorders, including apraxia. In real-people terms: it’s physical therapy for the mouth. The therapist will touch Ryan’s face and mouth to help her form sounds. Katie has done a lot of research and it looks promising. Our insurance has approved 3 visits so far. As Ryan’s gross motor skills improve, her speech does as well and we can see the potential she has. Just 2 weeks ago she finally started producing the B sound. She also tries to produce the end of her words more. For example, “eyes” are “iii…sch” and “box” is “bah…sch”. But there is quite a pause between the beginning and end of the word. We are also hoping that this will improve her eating/drinking skills and she will finally get off that damn bottle once and for all! Ryan has great receptive language and these 2 videos show that her cognitive level is good but her speech is weak.
Here’s to a happy and productive 2016! Cheers!